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Projects and Progress
Introduction | National
CIL Management Database | Alternate Funding
for CIL Operation | Transition Programs
for Youth with Disabilities | Resource Guide
for the Elderly Disabled | I L
Management Research | Cultural Competency
| I L and V R Collaboration Models | Management
Improvement
Introduction
The Rehabilitation Research and Training Center on Independent
Living Management is a collaborative program with 6 research areas or
sub-projects. Within the sub-project areas are additional research topics
and investigations. The overall goal of the project is to contribute to
the performance effectiveness and success of independent living centers
and IL management. The primary research strategies of the various projects
combine survey research methodologies involving questionnaires, interviews
and focus groups and descriptive research methodologies involving case
studies and replication of best practice models.
The RRTC-ILM has recruited project partners who have demonstrated
research and application expertise in the topic field for each of the
sub-project areas.
Sub Projects
1 - The National
CIL Management Database
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Project Partner - Machiko Tomita, PhD
Dr. Machiko Tomita has eight years of experience developing a database
for the RERC on Assistive Technology for Older Persons, at the University
at Buffalo. This database collects and stores information about
older persons living independently. It contains longitudinal data
for nine years on over five hundred people, collected through an
eighty page questionnaire. Dr. Tomita's experience in database design,
data collection and coding, and data analysis makes her eminently
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Project Progress – The following list of resources
have been developed.
The
Compendium of Resources for Independent Living Management
Imagine the benefit of web-based resources for operating an independent
living center. Being able to review job descriptions, by-laws, policies
and procedures and program descriptions of CILs from across the US. CILs
peer mentoring CILs, sharing experience and expertise. That is the philosophy
of the Compendium of Resources for Independent Living Management. Over
300 independent living centers have responded to our national Independent
Living Organizational Survey, providing information about their size,
budget, programs / services, management structure and funding sources.
The RRTC-ILM website will allow access to the Compendium to look up information
and copy resources to assist in operating centers. You participate in
this resource by going to the Compendium page, completing a survey and
sending it to the RRTC-ILM. We will e-mail you a password to access the
Compendium.
The
National CIL Directory – a directory of independent living
centers in the US and territories searchable by center name, state, city
or directors last name.
The
SILC Compendium – Similar to the Compendium of Resources
for CIL Management, this resource contains information about the State
Independent Living Councils across the US.
CIL
Organizational Profiles – A collection of data snapshots
listed by budget size, this organizational profile presents - consumer
service levels, center structure, sources of funding, types of programs
and staff salary structure
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- Alternate Funding for CILs.
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Project Partner - James L. King MBA
Jim King has served as the State Director of The New York State
Small Business Development Center (SBDC) since 1984. He authored
and developed the SBDC program under the sponsorship of the U.S.
Small Business Administration (SBA), the State University of New
York, and the State of New York. Mr. King has a MBA in Finance
and Marketing from Bowling Green State University. As Director,
Mr. King has helped thousands of New York businesses to invest
well over $1.5 billion in the state’s economy.
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Project Progress |
The project staff have successfully completed three small business
development models that are in the process of being documented.
Two additional centers are developing small business ventures
which will be added to the models. To read more about the application
of SBDC process to non profit CILS click
here.
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Identifying the best practices and developing test programs for
CILs, to expand their services to youth with disabilities and
their families.
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Project Partner - Mike Wehmeyer PhD
Michael Wehmeyer is Director of Self-Determination Projects at
University of Kansas Beach Center on Families and Disability,
and Research Associate Professor at KU’s Schiefelbusch Institute
on Life Span Studies. Dr. Wehmeyer received his Ph.D. in Human
Development at The University of Texas at Dallas, holds a MSc
degree in Experimental Psychology from the University of Sussex,
England, and undergraduate and graduate degrees in special education
from Tulsa University. He has published more than 80 journal articles
or book chapters on self-determination, student involvement, and
transition, and is the co-editor or co-author of 5 books or monographs
on these topics.
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Project Progress |
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Examining the role of centers for
independent living in the transition
of youth from secondary education to adult life. RRTC-ILM Newsletter,
2 (1) 6-10.
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3B - Resource Guide
Elderly Disabled -
There is a significant need among older persons for the type of
services offered through Independent Living Centers, including services
related to transportation, housing, and information about assistive
devices.
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Project Partner - William C. Mann,
OTR, PhD
Bill Mann is presently professor and Chairman of the Department
of Occupational Therapy College of Health Professions at the University
of Florida, and directs the Ph.D. Program in Rehabilitation Science.
As Professor Emeritus, he remains Principal Investigator for the
RERC on Technology for Successful Aging at the University at Buffalo,
now in its ninth year of funding. Dr. Mann founded the Center
for Assistive Technology, University at Buffalo. He has authored
over fifty peer-reviewed papers on issues related to helping seniors
maintain their independence as they age with or into disabling
conditions. Dr. Mann received his doctoral degree in Higher Education
from the University at Buffalo. He will research CIL programs
that make independent living possible for individuals who become
disabled in old age, and will identify successful practices that
can be applied to the population.
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Project Progress |
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Centers for Independent Living (CIL) Pathfinder for
Services & Programs for Older Americans
This informational guide was developed to help CILs:
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understand specific needs and problems that
are unique to aging,
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learn about the network of organizations serving
the aged including their programs, services and funding sources,
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identify ways to network with the agencies serving
the older Americans and
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locate and tap into funding that is available
for “senior” programs.
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4A
- Management Practices of CILs.
Identifying and prioritizing critical management practices of
Independent Living Centers and developing and testing new strategies
to enable CILs to benefit from management models of other successful
community-based organizations.
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Stakeholder perceptions of an effective CIL
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4B - Improving the Cultural Competency of IL Staff.
Develop and test training models to improve the core competency
skills in geographically dispersed, culturally and linguistically
diverse CIL staff. Evaluate strategies for improved recruitment
and retention of CIL staff from diverse backgrounds;
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| Project Partner - John Stone, PhD and John Moffat -
John Stone holds a M. S. degree
in Public Administration and a PhD in Education (Instructional Design
and Development) from Florida State University. Dr. Stone is Clinical
Associate Professor in the Department of Occupational Therapy at
the University of Buffalo, and Director of the NIDRR funded Center
for International Rehabilitation Research Information and Exchange
(CIRRIE). Dr. Stone has 25 years of experience in training and instructional
technology. Having served a Peace Corps assignment in India, and
a 17-year career in Brazil, he is especially well qualified to interpret
“culture brokering” theory for use in CILs. Under Dr.
Stone’s guidance, staff trainers will adapt the workshop that
CIRRIE has been successfully presenting to other rehabilitation
service providers that assist foreign-born individuals with disabilities.
Center for International Rehabilitation
Research Information and Exchange
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| Project Progress |
Culture Brokering training is presented in two formats. A two
day face-to-face workshop version is available for groups of 20
– 25 CIL staff. This program is offered at minimal cost to
IL centers, state independent living councils or state associations
for staff development.
Culture
Brokering Workshop – “Successful Outreach to Foreign-Born
Consumers through Culture Brokering”
The second is an individualized instruction format also available
as a computer CD Rom tutorial. Culture
Brokering Tutorial CD
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5 - Successful Collaborations between CILs and State VR Programs
Investigating CIL and vocational rehabilitation agency policies
related to collaborations, and designing strategies for innovative
partnerships to promote employment outcomes for individuals with
disabilities.
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Project Partners - Brenda Premo and Susan Stoddard,
PhD
Brenda Premo, MBA is the Founding Director of the Center for Disability
Issues and the Health Professions (CDIHP) of Western University
of Health Sciences in Pomona, California. She was previously a Deputy
Director and then Director of the California State Department of
Rehabilitation during the 1990’s. For fourteen years she headed
the ILC serving Orange County. A two-time President of the California
Foundation for Independent Living Centers, Ms. Premo served on a
variety of professional boards, conferences, and committees, including
the National Organization on Disability and the National Council
on Disability.
Susan Stoddard, PhD., FAICP, founder and President of InfoUse, started
her evaluation career at the Center for Independent Living (CIL),
in Berkeley, California. Her monograph on "Independent Living"
was used by congressional staff when drafting the 1978 Rehabilitation
Act Amendments.
For five years, Dr. Stoddard assisted the Office of the Director,
National Institute on Disability and Rehabilitation Research, in
designing and implementing Program Reviews of RRTCs and RERCs. Susan
earned a Master’s degree and Ph.D. in City and Regional Planning
at the University of California, College of Environmental Design
at Berkeley. She is a founder and Chairman of the Institute on the
Study of Family, Work and Community. At InfoUse, she has participated
in the national longitudinal study of vocational rehabilitation
and co-investigator of the Robert Wood Johnson program on "Improving
Services for People with Disabilities."
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6 - Management
Improvement and Development Resources
Distance Learning
Disability
Rights Timeline - Highlights important historic events in the disability
rights movement in the US.
An
Interview with Judy Heumann - Judy Heumann being interviewed in her home talking about her
life as an independent living pioneer.
Consumer
Profiles
This state by state analysis of the 2001 – 2002 annual performance
data from 704 reports will show you the ages, disabilities, gender and
races of consumers served by your state. You can compare your center’s
service demographics to your states totals. Consumer Profile Chart Book
of 704 Performance Data
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