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Projects and Progress


Introduction | National CIL Management Database | Alternate Funding for CIL Operation | Transition Programs for Youth with Disabilities | Resource Guide for the Elderly Disabled |  I L Management Research | Cultural Competency | I L and V R Collaboration Models | Management Improvement

Introduction

The Rehabilitation Research and Training Center on Independent Living Management is a collaborative program with 6 research areas or sub-projects. Within the sub-project areas are additional research topics and investigations. The overall goal of the project is to contribute to the performance effectiveness and success of independent living centers and IL management. The primary research strategies of the various projects combine survey research methodologies involving questionnaires, interviews and focus groups and descriptive research methodologies involving case studies and replication of best practice models.

The RRTC-ILM has recruited project partners who have demonstrated research and application expertise in the topic field for each of the sub-project areas.

Sub Projects

1 - The National CIL Management Database

Project Partner - Machiko Tomita, PhD

Dr. Machiko Tomita has eight years of experience developing a database for the RERC on Assistive Technology for Older Persons, at the University at Buffalo. This database collects and stores information about older persons living independently. It contains longitudinal data for nine years on over five hundred people, collected through an eighty page questionnaire. Dr. Tomita's experience in database design, data collection and coding, and data analysis makes her eminently qualified to lead this effort.

   

Project Progress – The following list of resources have been developed.

The Compendium of Resources for Independent Living Management
Imagine the benefit of web-based resources for operating an independent living center. Being able to review job descriptions, by-laws, policies and procedures and program descriptions of CILs from across the US. CILs peer mentoring CILs, sharing experience and expertise. That is the philosophy of the Compendium of Resources for Independent Living Management. Over 300 independent living centers have responded to our national Independent Living Organizational Survey, providing information about their size, budget, programs / services, management structure and funding sources.

The RRTC-ILM website will allow access to the Compendium to look up information and copy resources to assist in operating centers. You participate in this resource by going to the Compendium page, completing a survey and sending it to the RRTC-ILM. We will e-mail you a password to access the Compendium.

The National CIL Directory – a directory of independent living centers in the US and territories searchable by center name, state, city or directors last name.

The SILC Compendium – Similar to the Compendium of Resources for CIL Management, this resource contains information about the State Independent Living Councils across the US.

CIL Organizational Profiles – A collection of data snapshots listed by budget size, this organizational profile presents - consumer service levels, center structure, sources of funding, types of programs and staff salary structure

2 - Alternate Funding for CILs.

 

Project Partner - James L. King MBA

Jim King has served as the State Director of The New York State Small Business Development Center (SBDC) since 1984. He authored and developed the SBDC program under the sponsorship of the U.S. Small Business Administration (SBA), the State University of New York, and the State of New York. Mr. King has a MBA in Finance and Marketing from Bowling Green State University. As Director, Mr. King has helped thousands of New York businesses to invest well over $1.5 billion in the state’s economy.

 

Project Progress

The project staff have successfully completed three small business development models that are in the process of being documented. Two additional centers are developing small business ventures which will be added to the models. To read more about the application of SBDC process to non profit CILS click here.

 

3A - Youth Transition -

Identifying the best practices and developing test programs for CILs, to expand their services to youth with disabilities and their families.

 

Project Partner - Mike Wehmeyer PhD

Michael Wehmeyer is Director of Self-Determination Projects at University of Kansas Beach Center on Families and Disability, and Research Associate Professor at KU’s Schiefelbusch Institute on Life Span Studies. Dr. Wehmeyer received his Ph.D. in Human Development at The University of Texas at Dallas, holds a MSc degree in Experimental Psychology from the University of Sussex, England, and undergraduate and graduate degrees in special education from Tulsa University. He has published more than 80 journal articles or book chapters on self-determination, student involvement, and transition, and is the co-editor or co-author of 5 books or monographs on these topics.

 

Project Progress

 

 

Examining the role of centers for independent living in the transition of youth from secondary education to adult life. RRTC-ILM Newsletter, 2 (1) 6-10.

 

 

3B - Resource Guide Elderly Disabled -

There is a significant need among older persons for the type of services offered through Independent Living Centers, including services related to transportation, housing, and information about assistive devices.

 

Project Partner - William C. Mann, OTR, PhD

Bill Mann is presently professor and Chairman of the Department of Occupational Therapy College of Health Professions at the University of Florida, and directs the Ph.D. Program in Rehabilitation Science. As Professor Emeritus, he remains Principal Investigator for the RERC on Technology for Successful Aging at the University at Buffalo, now in its ninth year of funding. Dr. Mann founded the Center for Assistive Technology, University at Buffalo. He has authored over fifty peer-reviewed papers on issues related to helping seniors maintain their independence as they age with or into disabling conditions. Dr. Mann received his doctoral degree in Higher Education from the University at Buffalo. He will research CIL programs that make independent living possible for individuals who become disabled in old age, and will identify successful practices that can be applied to the population.

 

Project Progress

 

 

HTML or PDF

Centers for Independent Living (CIL) Pathfinder for Services & Programs for Older Americans

This informational guide was developed to help CILs:

  1. understand specific needs and problems that are unique to aging,
  2. learn about the network of organizations serving the aged including their programs, services and funding sources,
  3. identify ways to network with the agencies serving the older Americans and
  4. locate and tap into funding that is available for “senior” programs.

 

 

4A - Management Practices of CILs.

Identifying and prioritizing critical management practices of Independent Living Centers and developing and testing new strategies to enable CILs to benefit from management models of other successful community-based organizations.

 

Stakeholder perceptions of an effective CIL

 

   

4B - Improving the Cultural Competency of IL Staff.

Develop and test training models to improve the core competency skills in geographically dispersed, culturally and linguistically diverse CIL staff. Evaluate strategies for improved recruitment and retention of CIL staff from diverse backgrounds;

 

Project Partner - John Stone, PhD and John Moffat -

John Stone holds a M. S. degree in Public Administration and a PhD in Education (Instructional Design and Development) from Florida State University. Dr. Stone is Clinical Associate Professor in the Department of Occupational Therapy at the University of Buffalo, and Director of the NIDRR funded Center for International Rehabilitation Research Information and Exchange (CIRRIE). Dr. Stone has 25 years of experience in training and instructional technology. Having served a Peace Corps assignment in India, and a 17-year career in Brazil, he is especially well qualified to interpret “culture brokering” theory for use in CILs. Under Dr. Stone’s guidance, staff trainers will adapt the workshop that CIRRIE has been successfully presenting to other rehabilitation service providers that assist foreign-born individuals with disabilities.

Center for International Rehabilitation Research Information and Exchange

 

Project Progress

Culture Brokering training is presented in two formats. A two day face-to-face workshop version is available for groups of 20 – 25 CIL staff. This program is offered at minimal cost to IL centers, state independent living councils or state associations for staff development.

Culture Brokering Workshop – “Successful Outreach to Foreign-Born Consumers through Culture Brokering”

The second is an individualized instruction format also available as a computer CD Rom tutorial. Culture Brokering Tutorial CD

 

 
   

5 - Successful Collaborations between CILs and State VR Programs

Investigating CIL and vocational rehabilitation agency policies related to collaborations, and designing strategies for innovative partnerships to promote employment outcomes for individuals with disabilities.

 

Project Partners - Brenda Premo and Susan Stoddard, PhD

Brenda Premo, MBA is the Founding Director of the Center for Disability Issues and the Health Professions (CDIHP) of Western University of Health Sciences in Pomona, California. She was previously a Deputy Director and then Director of the California State Department of Rehabilitation during the 1990’s. For fourteen years she headed the ILC serving Orange County. A two-time President of the California Foundation for Independent Living Centers, Ms. Premo served on a variety of professional boards, conferences, and committees, including the National Organization on Disability and the National Council on Disability.
Susan Stoddard, PhD., FAICP, founder and President of InfoUse, started her evaluation career at the Center for Independent Living (CIL), in Berkeley, California. Her monograph on "Independent Living" was used by congressional staff when drafting the 1978 Rehabilitation Act Amendments.
For five years, Dr. Stoddard assisted the Office of the Director, National Institute on Disability and Rehabilitation Research, in designing and implementing Program Reviews of RRTCs and RERCs. Susan earned a Master’s degree and Ph.D. in City and Regional Planning at the University of California, College of Environmental Design at Berkeley. She is a founder and Chairman of the Institute on the Study of Family, Work and Community. At InfoUse, she has participated in the national longitudinal study of vocational rehabilitation and co-investigator of the Robert Wood Johnson program on "Improving Services for People with Disabilities."

 

   

6 - Management Improvement and Development Resources

Distance Learning

Disability Rights Timeline - Highlights important historic events in the disability rights movement in the US.

An Interview with Judy Heumann - Judy Heumann being interviewed in her home talking about her life as an independent living pioneer.

Consumer Profiles
This state by state analysis of the 2001 – 2002 annual performance data from 704 reports will show you the ages, disabilities, gender and races of consumers served by your state. You can compare your center’s service demographics to your states totals. Consumer Profile Chart Book of 704 Performance Data

 

 

   
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